Autonomy
within a given scope, the opinion of Rabbi Shlomo Zalman
Auerbach1
Aryeh Dienstag and Penina Dienstag
[1]The moral-medical problem presented
by the dying patient is hardly new and has been a continuing source of debate
and controversy in societies of differing ethnicity and religion.[2] In
recent years, however, the issue has become even more acute, and it is not
difficult to understand why. The great advancement of modern medicine and
technological intervention has made it possible to prolong life in situations
that were in the past unthinkable. Most people in contemporary Western
societies die in institutions rather than at home. Their medical and
institutional caretakers often have value systems, particularly regarding the
sanctity and even the definition of life, that differ from their own. There is
also a more pronounced involvement in medical-ethical decision making by
society, which must account for allocation of life-sustaining resources that
are consumed in large quantities by the terminally ill.[3] But some
weighty issues have not changed. Extending life is often complicated by the
suffering of the dying patient. Semantically for some, “extending the patient’s
life” becomes interchangeable with “prolonging his or her death.” Absorbing all
of these considerations, contemporary thinking often pulls in different
directions. One modern trend in medical ethics has been to focus on patient
autonomy, allowing the patient to decide whether he or she desires
life-extending treatment. But, there have also been calls to curtail this
power, grounded in a sense of arbitrariness and the need to ration precious
medical resources.[4]
This
essay examines the perspectives on these weighty issues of the twentieth
century Jewish sage Rabbi Shlomo Zalman Auerbach.
Rabbi
Auerbach (1910 – 1995) was the dean of a rabbinical school for decades and a
preeminent, though untitled, decider of Jewish law in Israel. He was well known
and respected for tackling cutting-edge halachic issues, particularly
with regard to medicine and technology. His analysis was at all times rooted in
halacha, the Talmudic Jewish legal system, although he was keenly aware of the
challenges and stresses to the system posed by contemporary medical and
scientific advances. Notwithstanding his loadstar of supreme fidelity to
halacha, he was particularly sensitive to the modern human condition.[5] It is
this quality which made Rabbi Auerbach a unique authority on the care of the
dying patient in Jewish law.
Secular
Medical Ethics and Considerations of Autonomy
The physician-patient relationship often raises complex
legal, ethical and personal issues. Nowhere are these issues more pronounced
than in “end of life” situations. At this juncture medicine has expended its
ability to cure with reasonable confidence. The physician is left to either
palliate, attempt experimental treatment that is often invasive and painful
with little prospects of success, or simply maintain basic bodily function
without appreciable quality of life.
Advances
in modern medicine have made both physician and patient choices in these
circumstances at once more varied and more vexing. Cardiac-pulmonary
resuscitation (CPR), defibrillation, pacing, ventilation and the like may
prolong life while effecting no positive change in patient condition. Should
they be implemented for the terminal patient, and if so at what cost to the
patient and society? Treatment in the intensive care unit (ICU) is a case in
point. The costs of ICU care are substantial. By one estimate, they comprise
34% of the budgets of hospitals in the United States[6].
“While many patients benefit from ICU care, one-fifth of all Americans now die
after ICU care some time during a terminal hospital admission.”[7]
Implicit in these statistics is the dilemma of applying scarce ICU resources to
the care of the terminal patient, prolonging life at significant societal cost
while not necessarily benefiting patients and their families.
Beauchamp
and Childress[8]
identified four ethical principles that inhere in the physician-patient relationship.
These are non-malfeasance — the obligation of the physician to avoid doing
harm; beneficence — the affirmative obligation of the physician to do good;
autonomy — the right of patient self-determination; and justice — an
over-arching moral principle that goes beyond the particular patient and
implicates broad social considerations. The first two principles are of ancient
vintage. The Hippocratic Oath, for example, speaks of beneficence and
non-malfeasance,[9]
but does not advocate autonomy or broader principles of justice. Childress and
Beauchamp attribute developments in Western philosophical thought to the
introduction of autonomy and general moral principles into medical ethics. For
example, Immanuel Kant believed in individual choice as a driver of ethical
conduct. John Stuart Mill likewise philosophized on the ability of the
individual to select and act upon moral principle. Together, these viewpoints
empower the individual to chart his or her own course of conduct, particularly
in matters of personal consequence.
It is not surprising that these ideas have found
their way into the medical arena. According
to Luce and White,[10] both
British and American common law early on recognized the right of a patient to
refuse or consent to treatment—although not on the basis of what is now
referred to as informed consent. By the early 20th century, the
courts began to address more nuanced issues of patient rights and physician
obligations, such as informed consent and the withdrawal of terminal life
support at the request of the patient or the patient’s medical proxy.
The
concept of individual autonomy appears as an important consideration in these
cases. For example, in the seminal case of Schloendorff
v. Society of New York Hospitals,[11] the New York Court of Appeals in a
decision authored by Justice Benjamin Cardozo stated that any adult patient
“sound of mind has the right to determine what shall be done with his body.”
This case established the principle of informed consent, with later decisions
expanding its contours and addressing such issues as disclosure of physician
conflicts and alternative treatment options. In an almost natural evolution,
the patient rights cases have gone on to address withholding and termination of
medical treatment in accordance with the wishes of the patient or the patient’s
family. In re Quinlan[12] a New Jersey Supreme Court case from
the mid 1970s, was first to hold that life-sustaining medical treatment could
be discontinued in certain circumstances. The case was significant not only
because it authorized medical caregivers to disconnect the mechanical
ventilator of a comatose patient. It also expanded the principle of patient
autonomy to allow a family member—here the patient’s father—to make critical
treatment decisions when the patient was incapable of doing so. Subsequent
cases have reinforced these rulings.[13]
By now,
individual autonomy as a guiding principle for determining the scope and
intensity of treatment is a pillar of mainstream secular medical ethics. What
may be less appreciated is that concepts of autonomy have also made their way
into medical halachic decision-making. This is somewhat surprising, since
Jewish law, at odds with much of contemporary secular legal thinking, does not
bestow ownership to a person over his physical being. It is nonetheless the
case that at least certain halachists have allowed
principles of patient autonomy to influence the care options for the terminal
patient.
Competing
Views in Halacha
Not
surprisingly, the medical ethical issues confronting secular ethicists and the
courts have also preoccupied halachic decisors,
particularly regarding the care of a terminally ill patient. The basic
questions are the same. How aggressive should the treatment be? How invasive? How expensive? How
discomforting? How prolonged? The care-giver must necessarily weigh the
severity of the patient’s symptoms, the patient’s remaining life expectancy,
the pain or discomfort being experienced by the patient and the efficacy or at
least the palliative effects of a proposed treatment regimen. For the observant
Jewish patient and his or her family, however, all of these considerations are
overlaid with difficult questions of halacha.
Two
twentieth century rabbinic decisors, Rabbi Eliezer
Waldenberg (1915 – 2006) and Rabbi Moshe Feinstein (1895 – 1986), have taken
polar halachic positions on the care of the terminally ill patient.
Rabbi
Waldenberg visits these issues in his work Ramat Rachel. Halacha and
medicine intersect principally in two arenas. One is the care of the dying
patient. The other is the Sabbath, where the halacha addresses the
circumstances, terms and conditions under which the prohibitions against melacha, loosely translated as work, may be waived
for medical treatment. Rabbi Waldenberg connects the two disciplines. To the
same extent as one may desecrate the Sabbath to care for the dying patient,
known in halacha as a gosses, one is commanded
to undertake measures to prolong the life of a terminally ill person. Rabbi
Waldenberg explains that the dispensation for otherwise forbidden acts to save
a life on the Sabbath is not based on a utilitarian calculus. Rather, it is
mandated by the principle of “You should live by them and not die by them.”
(See Babylonian Talmud Yoma 85b) One may desecrate the Sabbath even to care for
a terminal patient experiencing intense suffering. Ipso facto, according to
Rabbi Waldenberg, one is required to extend care to this patient.[14] It is
not a patient or family decision whether to accept or reject treatment.
According to Rabbi Waldenberg, the physician must labor to extend life at all
costs, irrespective of patient or family wishes.[15]
Rabbi
Feinstein adopts a position at the other end of the halachic spectrum. He
concludes, “If a physician is unable to alleviate a patient’s suffering, and
[his efforts] just extend the patient’s suffering life with medications, he
should not do so.”[16] Rabbi
Feinstein explains that a physician has no obligation to heal where he cannot
cure. In such a circumstance, the physician’s religious obligation shifts to
palliating pain and suffering.[17]
Rabbi
Auerbach’s Position
Rabbi
Auerbach’s approach lies between these two extremes. He allows extraordinary
measures to be implemented for the benefit of a terminal patient. But he also
permits the patient to refuse such interventions. He writes: [18]
Many debate
the question of treatment of a terminal patient (gosses).[19] There
are those who think just as one desecrates the Shabbat for temporary life (chayei shaah) so
too one is obligated to force a patient [to accept the treatment], for he [the
patient] does not own himself to forgo even one minute [of life]. However, it
is reasonable to conclude that, if the patient suffers from great pain and
suffering, or even from very strong emotional pain, [while] it is required to
give the patient food and oxygen even against his will, it is permitted to
refrain from giving medications that cause pain to the patient if the patient
requests this.[20],[21]
Contrary
to Rabbi Waldenberg, here Rabbi Auerbach does not see in the permission to
violate the Sabbath in order to save a gosses
an absolute mandate to treat the dying patient, whether on a Sabbath or a
weekday. He decouples the two issues, but offers no explanation for doing so.[22]
Importantly,
however, Rabbi Auerbach adds:
If the
patient is God-fearing, and this will not disturb his mind excessively, it is
preferable to tell him that one hour of repentance in this world is preferable
to all of life in the next world, as seen in [Babylonian Talmud Tractate] Sotah (20b)[23]; and
that there is “merit” in suffering for seven years rather than dying
immediately.
This
latter idea is reinforced in another of Rabbi Auerbach’s responsa, in which he
comes much closer to the position of Rabbi Waldenberg. He does not dispute
Rabbi Waldenberg’s central thesis that the worth of human life is immeasurable
and agrees that treatment should be pursued in many situations where life
appears pained, unproductive, or potentially “not worth living.” He writes:
Even where
it is simple and clear that the life of a [fully] paralyzed person is not worth
living . . . we are commanded to extend [that life], and if he is sick we are
commanded to desecrate the Sabbath, because the concept of “life” has no
measure to gauge its worth. . . . Furthermore, it seems to me even if the sick
person is really suffering, so that according to halacha one is commanded to
pray that he die, as was written by the Ran [Rabbi Nissim of Gerondi (ca. 1320 – 1380)] on [Babylonian Talmud Tractate] Nedarim 40a and quoted by the decisors,
even while praying for the patient to die, one must repeatedly labor to save
the patient’s life and desecrate the Sabbath to save him.”[24]
The cited
imperative to pray for the early demise of a dying patient in great distress is
based upon a story in Babylonian Talmud Tractate Ketubot
104a. The Talmud relates:
On the day
that Rebbe [Rabbi Judah the Prince, author of the Mishnah, late second century
CE] was dying the Rabbis instituted a fast and begged for mercy and proclaimed
that anyone who said that Rebbe is dying should be stabbed with a knife. The
housemaid of Rebbe climbed to the roof and said ‘the heavens are requesting
Rebbe and the earth is requesting Rebbe. May it be your will that the earth
should overcome the heavens.’ When she saw how many times Rebbe had to use the
bathroom and remove his phylacteries and the suffering involved, she said ‘may
it be your will that the heavens will overcome the earth.’ When she saw that
the students continued to pray she took an urn and threw it to the ground. The students
stopped praying [because of the sound of the urn breaking] and Rebbe's soul
departed."[25]
The story
implies that there are instances where death is preferable to life. Indeed,
based on this account, Rabbi Feinstein concludes there are times when a patient
should refuse certain medical treatments if they will serve only to extend his
suffering.[26]
It is
unclear why Rabbi Auerbach above chooses to rely on Tractate Sotah for the categorical principle that a suffering life
is morally preferred over a quick and painless death, when Tractate Ketubot offers contrary implications. What can be said is
that the contradictory imperatives offered by Rabbi Auerbach—pray for the
patient to die while laboring to extend his life—is symptomatic of the tensions
that the Rabbinic decisor contends with as he
ventures to deal with these difficult issues.
However,
the resolution of these tensions for Rabbi Auerbach is more nuanced than his
statement of general principle would suggest. The case addressed by Rabbi
Auerbach in this particular responsa involved a woman facing life-saving
surgery that would likely render her a quadriplegic. Rabbi Auerbach concluded
that this was a case where nonintervention was a halachic option. Relying upon
G-d’s mercy, the patient could, he said, elect not to undergo the surgery.[27]
Reconciling
principle with practice in this responsum is not easy. Rabbi Auerbach appears
to allow a patient through inaction to choose an almost certain death over an
ineffective or painful life. On the other hand, existence in a debilitative
stage of a “life not worth living” may not excuse efforts to prolong that life.[28] The
important point, though, is that Rabbi Auerbach allows for at least some
measure of patient input and autonomous decision to inform the level and
quality of care to be afforded in end of life situations.
Personal
Autonomy and Medical Treatment
The
conventional view in Jewish medical ethics, to which Rabbi Auerbach subscribes,
is that a person does not have property rights on his body. A person’s body is
owned by God.[29] Taken
to the extreme, this principle implies that a patient should have no
discretionary authority over medical decisions pertaining to his or her life.[30]
Halacha, as interpreted by competent Rabbinic authority, should in all instances
control.
This
position is forcefully articulated by Rabbi Yaakov Emden[31], an 18th
century (1697 – 1776) Eastern European Jewish scholar. Rabbi Emden addressed
the circumstance of an individual who refused medical therapy on the Sabbath
and held that he may be compelled to accept treatment He wrote:
In the case
of an illness or wound which is exposed and about which the physician has
certain knowledge and clear recognition and deals with a proven medication, it
is certain that we always, in every matter and manner, impose therapy on a
patient who refuses in the face of danger, because the physician has been
granted permission [by the Almighty] to cure, for example, to do surgery, to
open abscesses, and to splint a limb, even to amputate a limb, in order to
rescue the individual from death. In all such cases, we perform the surgery
even against the will of the patient because of [its life-saving character]. We
ignore his will if he does not want to suffer and prefers death to life, and we
even amputate a full limb if this is necessary to save his life, and we do all
that is necessary for the saving of life against the will of the patient. This
obligation is incumbent on every individual because of the command to “not
stand idly by your friend’s blood.” And the decision does not depend on the
opinion of the patient and he doesn’t have the right to commit suicide.[32]
It would
seem that Rabbi Auerbach would take issue with this uncompromising position and
allow that autonomy is a viable basis on which to render medical decisions. In
some cases, it may even be the primary mechanism to do so.
As we
have seen, in the case where life-saving surgery could induce quadriplegia,
Rabbi Auerbach ruled it halachically permissible for the patient to decline
medical intervention.[33] Rabbi
Emden would likely have compelled the surgery. While living the life of a
quadriplegic, the patient could have engaged in Torah study, introspection and
repentance, using a body belonging to God, albeit an impaired one, to engage in
activities of ultimate religious worth. Nonetheless, Rabbi Auerbach would
seemingly allow for the substitution of a potentially morally undesirable
option, as determined by a literalist application of the supreme value of human
life, for what appears to our sensitivities to be a morally preferable one.
In
another responsum Rabbi Auerbach allows a terminally ill patient to take a pain
reliever such as morphine[34] that
will lower his breathing rate and therefore shorten his life, using the
rationale of shomer petaim Hashem—God watches over fools—and the
commandment to “Love thy neighbor as thy self.”[35] He writes:
Being that
suffering is very hard on a person and difficult to tolerate, as we see from
the Talmudic dictum, “Had Hananiah, Mishael and Azariah been tortured they would
have acceded,”[36] it is
evident that we must have mercy on the patient and lessen his suffering and
palliate his pains, in particular because it is possible that strong pains
weaken and harm a patient more than the medications [to ease the pain]. If the
patient is conscious, I believe that it is necessary to tell the patient what
is being done to him, if in any event he knows his present state. However, even
if he is not aware [of his state], [we may apply the principle] found in
[Babylonian Talmud Tractate] Sanhedrin 84b, as explained by [the Talmudic
exegete] Rashi, “Love thy neighbor as thyself—Israel is prohibited to do to
others what they themselves would not want for themselves.”
In the
case before us any patient would prefer to palliate his pains even if this
would hurt his body; therefore we have a presumption that this is the will of
the patient. It is self-evident that this is so only when the purpose is
palliative in nature, and the fact that this hastens his death is likened to a pesik reisha
[inevitable side-effect] that is undesirable. We also find in the Talmud many
places where people do many things that are dangerous; however, since many [are
willing to accept the risk] (lit. tread upon it) it is considered shomer petaim Hashem [God
watches over fools]. Since it is the way of all patients to do this, it is good
to apply the principle of shomer petaim Hashem in our case, and we must palliate the
pain. May God have mercy.[37]
Here,
Rabbi Auerbach appears to advance the idea of patient autonomy a step further.
Not only do we act upon the express wishes of the patient, we may make
treatment decisions based upon the patient’s presumed will.
Right
of Consent
In a
recently republished responsum written to Professor Avraham Steinberg, Rabbi
Auerbach extended the level of autonomy of a patient further, requiring patient
consent for certain medical treatment. Rabbi Auerbach responded to the question
of whether a doctor is considered to have committed battery if he or she
applies therapy beyond the norm or without appropriate consent. Rabbi Auerbach
wrote:
It seems to
me that if the therapy was beyond accepted practice then the doctor has
assaulted the patient, even if this was done with the best of intentions. . . .
I think that even in an extreme situation a doctor cannot perform a dangerous
surgery, or amputate a hand or foot, without the consent of the patient, even
if the doctors are certain the procedure is necessary. If the patient is
unconscious, the family members may consent on behalf of the patient based on
their understanding of what the patient would want. However, if there is no
danger whatsoever the patient himself must consent. [38]
Rabbi
Auerbach qualifies this right of consent. He notes that there is presumed
consent for most therapies in a hospital setting, since patients are generally
hospitalized of their own will, although “for a surgery or a difficult
(painful) test, consent may be needed.”[39] The consent
need not be what we would regard as “informed.” A doctor can say simply, “This
is my recommendation and if you don’t want to follow my advice you can go to a
different doctor or a different hospital.”[40] Also, Rabbi
Auerbach allows treatment against the will of a psychiatric patient, though it
is preferable to obtain a family member’s consent. [41]
Resolving
the Conceptual Conflict
Steinberg
addresses the seeming contradictions in Rabbi Auerbach’s medical jurisprudence,
at once affirming the supreme value of life and recognizing divine ownership of
our corporeal being but also empowering the patient to decline life-saving
treatment. There is a tension, he explains, between the obligation to save life
and the obligation to alleviate suffering, but each has its scriptural source.[42] The
obligation to mitigate pain derives from the commandment of “Love thy neighbor
as thyself.” (Leviticus 19:18) The obligation to save a life is based on
imperative of “Thou shall not stand by thy neighbor’s blood.” (Leviticus 19:16)
The tension between these two imperatives creates a grey area that gives
patient autonomy a sphere of influence. This swath of patient autonomy afforded
by Rabbi Auerbach, at least in some cases, approaches what is advocated by
conventional medical ethicists.
Benjamin Freedman offers other explanations that may
provide insight into Rabbi Auerbach’s approach. Freedman acknowledges a
universal commandment to provide care and healing to a sick person, but posits
that this obligation rests first and foremost on the patient and his family.
The closer the relationship to the patient the greater is the halachic
obligation of care. For this reason, for example, a family member may be
required to do all, that he or she is able to impress upon a relative to quit
smoking, while the family physician may have no such obligation. With
responsibility, however, comes authority. Having the greater halachic
responsibility for the welfare of the medical patient, the patient and
secondarily his or her family is also afforded greater say in treatment.[43]
Resolution
of the conceptual conflict lies in the relationship between the individual and
his or her body. While it is true that our bodies are property of the Almighty,
we are stewards of our physical existence, commanded to care for and eventually
return it to its Maker. As a guardian, we are permitted and even required to
make intelligent and insightful decisions regarding the bailment entrusted to
our care. This is not to say that an individual is given free reign over his or
her life, and a patient may not refuse prudent medical care under normal
circumstances. However, in cases where death is inevitable or imminent and
there is a conflict between the duty to palliate pain and the commandment to
preserve life,[44] the
patient is the authorized arbitrator.[45]
Left to
be resolved is the seeming conflict between the dispensation to violate the
Sabbath on behalf of a terminally ill patient in life-threatening distress and
the autonomy that allows the patient to decline medical care in these same
circumstances. Rabbi Waldenberg cannot accept the notion of a physician’s desecrating
the Sabbath to treat a patient authorized by halacha to refuse that treatment.
Rabbi Auerbach is prepared to live with this dichotomy, perhaps because he
views the seemingly conflicted halachic concepts as directed to different
actors.[46] The
precept of “Thou shall live by them and not die by them” (Babylonian Talmud
Tractate Yoma 85b) is directed to man as caregiver. It is unqualified and
precludes application of Sabbath laws that will lead to a patient’s death, even
if death is in any event imminent or unavoidable. But it is not necessarily
directed to man as patient. The patient may rely on another halachically
sanctioned principle. “The heart knows the bitterness of the soul,” say the
Rabbis. (Babylonian Talmud Tractate Yoma 83a) This principle mandates feeding a
dangerously ill patient on Yom Kippur on his own say-so, even where the expert
physician opines that feeding is unnecessary.[47]
Perhaps it also supports exercise of autonomy to decline treatment, where the
patient believes the benefits of treatment are outweighed by the degradation[48] in
the physical and emotional state of being that such treatment would entail.
This
dichotomy can seemingly function in the opposite direction as well, according
to Rabbi Auerbach. Where a terminal patient experiences constant and
unremitting pain, the principle of “Love thy neighbor as thyself” may compel
the physician to desist from care that extends a patient’s suffering, to the
point of following a palliative regimen that will actually shorten the
patient’s life. Rabbi Auerbach nonetheless recommends, but does not require,
that the patient elect to live a life of suffering rather then opt for a quick
and easy death. This is in keeping with the principle of “One hour lived with
repentance and good deeds in this world is superior to all the days of the
World to Come.” (Mishnah Tractate Avot 4:17) Rabbi Auerbach would say that
there is no contradiction here, since the individual physician and patient
would be following his or her own Torah directive. The optimum religiously
ethical course may be a continued life of suffering lived in the ways of the
Torah. The patient is urged to choose this course. But the physician cannot be
righteous at the patient’s expense.
Principles
It may be
useful to outline the ethical imperatives to which Rabbi Auerbach subscribes
and which emerge from this discussion.
(1)
Life is of immeasurable value—
·
the sanctity of life is a paramount ethical
consideration; and
·
extending life is desirable in all circumstances, as
it allows for repentance and Torah study.
(2)
A patient has a right of autonomy, defined as a right
to choose among treatment options, including the right to decline treatment in
certain circumstances.
(3)
Mitigating patient suffering—correlating with the
value of beneficence in the vernacular of medical ethics—is a valid halachic
treatment consideration.
In cases
where these principles conflict, there is room for different halachic outcomes
depending on individual circumstance and preference.
Conclusion
Rabbi
Shlomo Zalman Auerbach addressed end-of-life
treatment in a number of responsa. He employed a variety of principles to
adjudicate the very difficult and heart-rending cases that often arise in this
area. What is striking about Rabbi Auerbach’s approach is the significance he
ascribes to the wishes of the patient, what has been called patient autonomy.
Rabbi Auerbach’s approach evidences at once a fierce commitment to the halachic
system as well as a keen sensitivity to the human condition.
[1] This
paper is an expansion of the article, Rabbi
Shlomo Zalman Auerbach’s Stance on End-of-Life Care, You Shall Surely Heal, The AECOM Synagogue
Compendium of Jewish Medical Ethics and Law, (KTAV 2009).
The
authors would like to give special thanks to Dr. Alan Jotkowitz
M.D. and Mr. Abbe Dienstag
Esq. for their guidance and assistance in writing this paper.
[2] Paul
Ramsey, The Patient as Person 116 (Yale University Press 1970).
[3] Avraham Steinberg, Encyclopedia
of Jewish Medical Ethics p. 1062
(Feldheim 2003)
[4] Alan
Jotkowitz “’May it be Your Will that Those Above
Overcome Those Below’ Rav Moshe Feinstein and Rav Eliezer Waldenberg
on the Care of the Dying Patient,” The Jakobovits
Center for Jewish Medical Ethics, Faculty of Health Sciences, Ben Gurion University of the Negev, Beer-Sheva,
Israel.
[5] Aharon Lichtenstein, “A Portrait of Rav Shlomo
Zalman Auerbach zt’l,”
Leaves of Faith p. 247 (Ktav 2003).
[6] Multz et al., quoted in Luce JM and White DB, A History of
Ethics and Law in the Intensive Care Unit, Critical Care Clinics 25
(2009).
[7] Angus
et al., in A History of Ethics and Law in the Intensive Care Unit, Crit Care Clin 25,
2009, p221
[8] Beauchamp
TL and Childress JF, Principles of Biomedical Ethics p. 61 (Oxford
University Press, 2d ed. 1982).
[9] Beauchamp
and Childress p. 106.
[10] Luce,
John M, White, Douglas B., A History of Ethics and Law in the Intensive Care
Unit, Critical Care Clinics 25 (2009) p. 223
[11] 211
N.Y. 125, 105 N.E. 92 (1914).
[12] 70
N.J. 10, 355 A.2d 647 (1976).
[13] For
a general discussion, see Luce and White supra.
[14] Responsa Ramat Rachel vol. 5 no. 28. Rabbi Waldenberg gives further proof and rationalization for
extending the life of the terminal patient in Responsa
Tzitz Eliezer
vol. 9 no. 47 and vol. 14 no. 80.
[15] Responsa Tzitz Eliezer vol. 18 no. 62.
[16] Responsa Iggrot Moshe,
C.M. Part 2 no. 74:1.
[17] Ibid.
[18] Responsa Minchat Shlomo Part 1, ch. 91 no.
24:2.
[19] The
question of whether a goses is the equivalent
of a medically terminal patient is beyond the scope of this article.
[20] Professor
Avraham Steinberg published a guide on treatment of
patients in an ICU. He states that his protocols were reviewed and approved by
Rabbi Shlomo Zalman Auerbach and Rabbi Shmuel Vosner, another contemporary halachic
decisor. The following is a loose translation of Dr.
Steinberg’s protocols:
(1) The protocols pertain to patients in the ICU
that fulfill the following criteria:
(i) The patient was accepted to the ICU on the
assumption that the life of the patient could be saved.
(ii) The patient received intensive care, including
mechanical ventilation, treatment for infections, treatment to sustain blood
pressure, treatment to prevent clots and bleeding, blood transfusion, parenteral feeding and permanent monitoring of blood
pressure, pulse, breathing and oxygen saturation.
(iii) Despite the intensive treatment, the patient
experienced irreversible failure of at least three vital organ systems.
(iv) All treating physicians, includes the ICU
doctors and medical specialists brought in on a consulting basis, have
concluded that there are no prospects for saving the patient’s life.
(v) Death is expected in a short time.
(vi) And, specifically, the patient is in pain, and it can be
assumed that the patient does not want to endure constant suffering.
(2) The protocols apply to all patients in an ICU,
whether they are adults, children or newborns.
(3) The key halachic
principles balance the obligation to save life, the prohibition against
actively shortening life and the imperative to mitigate unending suffering.
(4) In these circumstances, the following
protocols should be observed:
(i) New treatment
that will lengthen a life of suffering should not be commenced.
(ii) New tests, such as blood tests to asses the
status of the patient, which cause patient suffering and are without purpose, should
not be administered.
(iii) There is no purpose in monitoring and
stabilizing a patient in this condition, including checking blood pressure,
pulse and oxygen saturation, notwithstanding that these are done automatically
with machines that were previously connected to the patient. There is no need
to treat the condition of the patient based on the displayed values; since the
patient is suffering, there is no purpose in these tests.
(iv) The patient should continue to be treated with
pain killers to alleviate pain and suffering.
(v) Any action that will lead to the immediate death of the patient is prohibited. Even action that questionably will lead to the immediate death of the patient may not be performed.
(vi) Therefore, it is prohibited to disconnect a patient from a respirator, if in the opinion of the doctors breathing is completely dependent on the machine. It is prohibited to immediately and completely stop medications such as dopamine, which are intended to maintain the blood pressure of the patient, if in the opinion of the doctors it is possible the blood pressure will precipitously fall leading to immediate death.
(vii) Changing or discontinuing therapy is permitted, if in the opinion of the doctors the patient will not die immediately, even though as a result the patient will die in a matter of hours, so long as the doctors determine that the patient is suffering. The changes should be implemented in stages, with the state of the patient being assessed after each stage.
(viii) Therefore, it is permitted lower the
respirator setting to the rate at which the patient breathes spontaneously; it
is permitted to lower blood oxygen concentration through mechanical perfusion
to the 20% level, which is the ambient oxygen concentration; it is permitted to
lower the level of dopamine, so long as there is no serious change in the
patient’s blood pressure, or, even if there is a change, so long as it will not
lead to the immediate death of the patient; it is permitted to eliminate
totally parenteral nutrition and revert to a nasogastric tube or an IV drip of water and glucose; it is
permitted to discontinue anticoagulants such as heparin or medications to
prevent internal bleeding such as H2 blockers; it is permitted to discontinue
insulin administered to lower the level of glucose in the blood; provided in
all cases that the patient is suffering.
(ix) Also, therefore, it is permitted to refrain
from refilling medications or to discontinue administration of treatments that
are given on a discrete rather than a continuous basis; for example, it is
permitted to discontinue dialysis, to refrain from replacing a completed bag of
IV dopamine, and to refrain from replacing a completed bag of IV antibiotics.
(5) These protocols are valid only for instances
in which the patient is suffering. The protocols are applicable only to
patients whose condition satisfies each of the enumerated criteria. In any
other case, a competent rabbinic authority must be consulted.
[21] Avraham Steinberg, Rules Governing a Doctor in an ICU,
63-64 Assia 18ff (Schlesinger Institute 1998).
Professor Abraham S. Abraham maintains that Rabbi Auerbach
did not agree with all of Professor Steinberg’s protocols. See Abraham S
Abraham, Nishmat Avraham,
Y. D. 320 D:1, p. 320.
[22] Rabbi
Auerbach often does not articulate the precise
reasoning in support of his positions, and the reader is left to reconstruct
his rationale.
[23] The
Talmud states that a Sotah—a woman determined through
a Temple ritual to have committed adultery—endures an extended period of
suffering prior to her death. Based on this, Maimonides offers the following
description of the demise of a Sotah: “A Sotah who has merit of learning Torah, even though she is
not obligated in it, does not die immediately . . . but suffers greatly for a year
or two or three according to her merit and dies with a swollen abdomen and her
limbs falling off.” (Yad, Laws of Sotah
3:20). Rabbi Waldenberg adduces proof from this
account that life must be extended at all costs. Tzitz
Eliezer vol. 14 no. 80. Indeed, he takes this idea
further, expanding upon the principle, “It is better one hour in this world
spent in repentance and Torah study then the entire world to come” (Sotah 20a). The law of Sotah,
according to Rabbi Waldenberg, implies that suffering
brings about atonement, which can be achieved even in the unconscious patient.
Thus, Rabbi Waldenberg recognizes the supreme value
of life even in a case where the patient is no longer conscious and has no
prospect of regaining consciousness. Such a patient is unable to engage in
Torah, mitzvot and repentance, yet Rabbi Waldenberg would apply the full panoply of halachic protection to preserving and even extending the
patient's life.
[24] Responsa Minchat Shlomo Part 1, ch. 91 no.
24:1.
[25] Babylonian
Talmud Tractate Ketubot 104a.
[26] Responsa Iggrot Moshe,
C.M. Part 2 no. 73:1
[27] Ibid.
[28] In
secular jurisprudence, brain death is widely considered to be legal death.
Rabbi Auerbach recognizes brain death to a limited
extent. He terms a brain-dead patient a “safek
goses”— a patient who is possibly dead or at
death’s doorstep — which has special halachic status
(Responsa Minchat
Shlomo Tanina, ch. 86:5). Such a patient, for example cannot be moved or
touched except for the patient’s benefit, lest the patient’s demise be accelerated.
Rabbi Auerbach would allow removal of mechanical
ventilation from a brain-dead patient.
[29] Responsa Minchat Shlomo Part 1, ch. 91 no.
24:2; Rabbi Shlomo Zalman Auerbach, “Consent for Medical Decisions,”
in Bracha
l’Avraham 135-136 (Schlesinger Institute,
Jerusalem 2008).
[30] Encyclopedia of Jewish Medical Ethics,
supra, at 1055.
[31] Shimon
Glick, Who Decides: the Doctor, the
Patient or the Rabbi? Jewish Medical Ethics Book Vol. 1,
the Schlesinger Institute, Jerusalem, 2004.
[32] Rabbi
Jacob Emden, Mor u-Ketzi’ah,
O.C. no. 328. Translation by Shimon Glick.
[33] Responsa Minchat Shlomo Part 1, ch. 91 no.
24:2.
[34] Nishmat Avraham
Y.D. 399 D:1, p. 321.
[35] Responsa Minchat Shlomo Tanina, ch. 86:2, Shimon Glick, “Questions with Rabbi Shlomo Zalman Auerbach: Shortening the
Life of Dangerously Ill Patients,” 59-60 Assia 46-51 (Schlesinger
Institute 1997).
Another contemporary halachic
authority, Rabbi Avigdor Nebentzal,
has disputed this position. See, Avigdor Nebentzal “The Giving of Medication to a Dangerously Ill
Patient in Order to Mitigate Pain,” Assia Book 4,
260-262 (Schlesinger Institute). On the other hand, Rabbi Eliezer
Waldenberg, despite his uncompromising advocacy for
extending the life of a terminally ill patient, allows administration of pain
medication that may hasten death. He bases this position on the verse “And you
shall surely heal” (Exodus 21:19), from which halacha
derives the physician’s permit and imperative to minister to the sick. See Jotkowitz, supra.
[36] Babylonian
Talmud Tractate Ketubot 33b.
[37] Responsa Minchat Shlomo Tanina, ch. 86:2. Rabbi Auerbach’s
position here is very similar to the Catholic concept of double effect. See
John Paul II, “Euthanasia,” in
On Moral Medicine 443 (Eerdman’s
1989). Rabbi Auerbach, however, limits his position
to cases where the medication will not result in the patient’s immediate death.
[38] Consent for Medical Decisions, supra, at 135-136. Rabbi Auerbach commented here in regarded to the responsum of Rabbi Emden quoted above. Rabbi Emden’s
response was cited to Rabbi Auerbach in a question
posed to him by Professor Steinberg.
[39] Ibid.
[40] Ibid.
[41] Ibid.
Rabbi Abraham quotes Rabbi Auerbach as saying that a
pregnant woman can elect to abort a fetus that is endangering her life. She can
say “I do not wish to provide nutrition to this fetus.” See Nishmat
Avraham C.M. 425 (A), “Abortion,” no. 6 p. 285.
This is another apparent instance of Rabbi Auerbach’s
support for patient autonomy in medical decision making.
[42] Rules Governing a Doctor in an ICU, supra; Encyclopedia of Jewish Medical Ethics, supra, at 1052.
[43] Benjamin
Freedman, Duty and Healing: Foundations of a Jewish Bioethic
139-142 (Routledge 1999).
[44] It
is obvious to Rabbi Auerbach that a patient
ordinarily can be forced to accept treatment that offers more then a fleeting
extension of life. This is based upon the “immeasurable value of life.” See Responsa Minchat Shlomo Part 1, ch. 91 no.
24:1.
[45] It
is possible that Rabbi Auerbach does not have full
confidence in medical science and believes that a patient may have more insight
into his condition than the physician. Rabbi Abraham Isaac Kook (1865–1935),
who officiated at Rabbi Auerbach’s wedding, also
questioned the certainty of medical diagnosis. See Rabbi Abraham Isaac Kook, Daat Cohen, ch. 140,
p. 259.
In what may be a similar vein, Rabbi Auerbach resisted medical definition of death. He wrote,
“One is not to rely on medical science to establish definitively whether a
patient has died. And it is a wonder [to me that a doctor should presume to
establish death], because the certainty [of death] . . . is a matter between a
person and his Maker.” Responsa Minchat
Shlomo Tanina ch: 86:5; 4th of Cheshvan 5753
part 2.
[46] The
idea of what may be termed conjugate conflicting concepts in Jewish ethical
thought has been attributed to Rabbi Israel Salanter
(1810-1883). As an example, scripture terms a delinquent borrower a rasha, a bad person. (Psalms 37:21) Yet halacha obligates a lender to avoid confronting a
delinquent borrower so as not to cause the borrower consternation or
embarrassment. See Maimonides Yad, Laws of the Lender
and Borrower 1:3. Rabbi Israel Salanter would resolve
the seeming conceptual conflict by observing that the concepts are directed to
different actors. The first is directed to the borrower, who must know that his
failure to repay is wrong. The second is directed to the lender, who must
nonetheless accord basic dignity to the borrower. (Transmitted in the name of
Rabbi Chaim Y. Goldvicht,
late dean of Yeshivat Kerem
B’Yavneh.)
[47] Shulchan Aruch O. C. 618:1
[48] Contemporary
halachic decisors also
address the competition of the terminally ill patient for scarce medical
resources. Rabbi Auerbach (Responsa
Minchat Shlomo Tanina, ch. 86:1) responded
to an inquiry by a South African doctor whose hospital proscribed the use of
ventilators for terminally ill patients, so that the devices would be available
for patients who had prospects for cure. Rabbi Auerbach
held that the doctor was required to adhere to hospital policy, although he was
unsure whether the hospital policy was justifiable. In contrast, Rabbi Vosner (Responsa Shevet Halevi C.M.
242) ruled that the doctor should not abide by the hospital policy, while Rabbi
Moshe Sternbuch (Responsa Teshuvot v’Hanhagot
C.M. 858) seems to concur with the policy. All rabbinic decisors
agree if a terminal and a curable patient are competing for a single available
ventilator, the ventilator should be given to the curable patient. Similarly,
all agree that a terminal patient may not be disconnected from a ventilator so
that the device can be used for a curable patient.